waylon benefit

“Waylon’s Story” Benefit

Waylon DelBoverlando is a two year old who suffers from a rare autosomal recessive lysosomal storage disease called Mucopolysaccharidosis, also known as Sanfilippo Syndrome. Caused by a deficiency in one of the enzymes needed to break down the glycosaminoglycan heparan sulfate, those affected suffer most from neurological symptoms. (more information below) The DelBoverlando family is hosting a benefit for the care and support of Waylon on Sunday, September 3, from 1-8p.m. at the Double J’ Saloon, 161 Brighton Ave., Rochester, PA., 15074. The event will feature live DJing and karaoke, an American Auction, 50/50 raffle, and $10 dinner plates. All…